by John Byrne Barry | Apr 26, 2019 | End of Life, When I Killed My Father
I heard Ram Dass on the radio telling a story about a Chinese farmer who is too old to work in the fields any more. He sits on the porch watching his children tend to the crops.
One day, his eldest son lugs a wooden box to the porch. “We’ve got too many mouths to feed,” the son says. “Get in the box.”
The old man gets in. The son puts a lid on the box and drags it toward the cliff at the edge of the farm.
He hears a knocking from inside the box. Takes off the lid.
His father sits up. “Son, I know what you’re doing and why, but might I suggest that you lift me out of the box and throw me over the cliff. That way, the box will be there when your children need it.”
That’s not quite the theme of my upcoming novel, an assisted-suicide family thriller called Why I Killed My Father, but it’s in the same universe. Without intending to, I’m now knee deep in writing about death and dying.
A few alarmed friends have reached out and asked if I’m OK. I am. Yes, I am going to die just like everyone else, but I’m healthy and active now and I’m hoping for several decades more. But I have been devoting far more of my energy to thinking and talking and reporting about death, and it’s not as morbid as I might have expected. I know it’s a cliché, but it’s true. Being more aware of death — our own as well as others — can make life more meaningful and precious.
That said, I know that many people are not necessarily waiting in line to talk about death, let alone read a novel about death. One friend, upon hearing what I am working on, said, “I’ll pass and wait on your next effort.”
I was disappointed to hear that, but I get it. Which is why I’ve worked hard to make this book as entertaining as possible. I call it a “page-turner with a conscience” — it moves like a thriller, but without explosions. Well, I guess there are explosions of a sort.
If all goes well, the book will be out this fall. You can read Chapter 1 here.
(I’m seeking a few more beta readers. Let me know if you’re interested.)
by John Byrne Barry | Apr 11, 2019 | End of Life
You might think that talking about death would be somber, and yes, sometimes it was.
But there was plenty of laughter. One man introduced himself by saying, “Today is a banner day. Today I’ve lived longer than I’ve ever lived before.”
One woman told the story of a friend, who, when she learned she had inoperable cancer, said, “Oh, I don’t have to go to work anymore.”
One man said he was comfortable with the idea of dying, but he couldn’t get himself to move on the paperwork like his will and advanced directive.
We heard about a woman with a terminal disease who was determined to end her own life and planned her suicide so thoroughly, she even sought out a partner for her soon-to-be-widowed spouse.
Another participant told about a friend who was dying who asked to have his funeral before he died, and he did, with a marching band and a theater troupe performing skits, and then he died two days later.
We even heard about a new attempt to use virtual reality to help people prepare for death. You put this contraption on your head and experience entering into a different reality.
But there were also tears. One woman, whose mother had died a number of years ago, found herself unexpectedly crying. She had missed her mother’s death, and is still grieving over that.
This Death Cafe, on the last day of March, was hosted by Sukhasiddhi Foundation (pronounced suka city), a Buddhist meditation center in Fairfax, California. I had attended one in the same venue four years ago — see My First Death Cafe — and for almost everyone who came then, it was for the first time. This time, at least half had attended one before.
Death Cafe is a “social franchise,” which mean anyone can host one, use the name Death Cafe, post their event to deathcafe.com, and speak to the press as an affiliate of Death Cafe. The events are usually free or for a small donation. There’s no agenda, or intent to sell people on a product or idea. And there’s always coffee and cake. It’s a discussion group, not grief support or counseling.
The Death Cafe model was founded and developed in 2011 in London by Jon Underwood and Susan Barsky Reid, and built on the ideas of Swiss sociologist Bernard Crettaz, who opened a Café Mortel (Death Café) for an exhibition in his Geneva museum called La Mort à Vivre (Death for Life).
Pat Berube, a teacher at Sukhasiddhi, facilitated this gathering and said that since the Death Cafe started, more than 8,000 gatherings have taken place. All over the world, primarily the western countries, but in April, there are Death Cafes scheduled in Lagos, Nigeria, and Lázaro Cárdenas in Michoacán, Mexico. There’s even a Virtual Death Cafe meeting online on April 12 via Zoom.
Since I attended my first Death Cafe, the founder, Jon Underwood, died of leukemia at 44. I also learned that the man who led the Death Cafe in Fairfax four years ago had died as well. (I do remember that when he introduced himself, he said he had a terminal disease.)
What’s also happened in the past four years has been an explosion in the end-of-life movement. More organizations are promoting talking about dying. More doctors and medical practitioners are urging a change in how we approach death.
The Netflix documentary, End Game, gives viewers an intimate look at dying patients at UCSF Medical Center and the Zen Hospice Project in San Francisco.
Another documentary, Extremis, which was nominated for a 2017 Academy Award and 2 Emmys, explores end of life-decision-making in the intensive care unit
Dr. Atul Gawande’s Being Mortal, published in 2014, has been hugely influential. Pulitzer-Prize winning columnist Ellen Goodman founded the Conversation Project to make it easier to initiate conversations about dying.
This fall, in San Francisco, a group called Reimagine End of Life, will be hosting its second gathering exploring death through music, comedy, dance, and the arts.
There are more than 100 Death Cafes scheduled this April, from Denmark to New Zealand to Texas. Sukhasiddhi has hosted more than ten in the past five years.
At the Sukhasiddhi gathering, after introductions, we settled into discussions at tables of four or five, and we took turns talking about why were there. I spoke about my mom dying last year, at 95. But more about her decline—how she lost her sight, then her mobility, then her mind. We had a small crowd on a sunny and gorgeous Sunday afternoon, but it was a very moving, intimate, and profound experience.
I left feeling grateful.
You can find a Death Cafe near you at deathcafe.com.
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